This is a blog accounting life experiences of raising a child with Congenital Glaucoma.... My son Matt, who is three years old is slowly going blind (he has already lost his vision in his right eye) and he calls it "going dark"...
Friday, May 4, 2012
I'm NOT going
We made the mistake this morning of informing Matt that he had to get dressed so we could take him to see the doctor. As soon as he heard the doctor's name he started to fight us.. "No, I don't want to get dressed" and "I don't want breakfast". Anything we asked of him, he refused. Finally Husband seated Matt in his lap and asked him why he was being so difficult and Matt told him "I don't want surgery"... There it was in a nutshell. We have often asked each other what we would do when the day came that he started to understand what was going on and started to verbally express his discontent with it... and here was that moment staring us right in the face... when it came time for us to get in the car, Matt screamed and cried "I'm NOT going!" he yelled.... Husband picked him up, placed him in his booster seat and buckled him in... I was so astonished by his refusal, I thought maybe it was a sign of something terrible about to happen but it was pure fear. When we arrived at the ophthalmologist office, he was okay. At first he covered his eyes but I must say I was so proud of him having the courage to remove his hands and allow the doctor to look into his eyes... When the exam was over, Husband and I cheered for him for being so brave...
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